Useful Links and Resources


INVOLVE is a national advisory group which supports greater public involvement in NHS, public health and social care research.

Involving People support and encourage patient, service user and carer involvement in health and social care research in Wales.

The Picker Institute Europe looks at patient views and experiences of healthcare.

James Lind Alliance Pressure Ulcer Partnership (JLAPUP) is looking at Pressure ulcer treatment uncertainties. PURSUN UK is a partner in this work.

The Tissue Viability Society (TVS) aims to provide expertise in wound management to all healthcare professionals.

The European Pressure Ulcer Advisory Panel was created to lead and support all European countries in the efforts to prevent and treat pressure ulcers.

Your Turn is a national movement working to reduce the number of pressure sores in the UK. The website includes useful information about pressure ulcer prevention and treatment.

An interesting video of a service user speaking about his experiences of pressure ulcer prevention.

The Spinal Injuries Association (SIA) is a user-led, national charity, providing support and information for the spinal cord injured community.

SHINE is a registered charity, which was formed to help families and individuals affected by spina bifida and hydrocephalus.

Age UK aim to aim to improve later life for everyone through information and advice, campaigns, products, training and research.

Diabetes UK is the largest organisation in the UK working for people with diabetes, funding research, campaigning and helping people live with the condition.

The Multiple Sclerosis (MS) Society is a charity which provides information and support, funding research and campaigns for change


Articles about PURSUN UK -

Muir D (2011) PURSUN UK. EWMA Journal. 11 (3) pp 26.

Muir D (2011) Patient and Public Involvement in Pressure Ulcer Research. Journal of Tissue Viability. 20 (4) pp 132-133.

Yorkshire Evening Post

Articles about pressure ulcers -

Click here to see an article in the Daily Mail which includes an interview with a member of PURSUN UK

Click here to see an article in the Telegraph about care of the elderly and pressure ulcers.

Click here to see an article in the Telegraph which looks at the cost of pressure ulcers to the NHS.

Articles about Patient and Public Involvement -

User Involvement in Rsearch by Nurses, Royal College of Nursing guidance


An interesting book chapter which looks at how health professionals and patients work together and describes the Patient Learning Journey model –
Morris, P., Dalton, E., McGoverin, A. and Symons, J. (2009) Preparing for patient-centred practice: developing the patient voice in health professional learning. In: Bradbury, H., Frost, N., Kilminster, S. and Zukas, M. (Ed) Beyond Reflective Practice Routledge, Oxford, 104-119