PURSUN UK is a network of people who have some personal experience of living with pressure ulcers or the measures put in place to prevent them. This can be as a service user, patient, carer or family member. We believe that this unique perspective is invaluable and must be a part of health related research.
Pressure Ulcers, sometimes called bedsores, are mainly caused by being in one position or unable to move a part of your body for a long period of time. They often occur as a complication of another illness or injury.Pressure ulcers can cause a great deal of discomfort and distress for sufferers, as well as those caring for them. They can lead to prolonged stays in hospital, reduced quality of life and in the worst cases, death. Pressure ulcers are a very serious problem for the NHS. In 2004 costs were estimated to be £1.4-2.1 billion per year.
The aims of our network are:
- To help provide service users, carers and the public a voice within pressure ulcer research.
- To raise awareness of pressure ulcers and improve patient care.
- To develop mechanisms which allow service users, carers and the public to be meaningfully and ethically involved in research.
- To recognise and develop the skills and expertise of network members.
Research opportunities are sent out to the network as they arise. We have a flexible approach to involvement in order to accommodate different peoples needs and skills. When people are unable to attend meetings and events we aim to provide opportunities to contribute to the network from home.
Examples of our members work include:
- Helping to develop clear patient materials
- Helping to develop new research ideas
- Becoming a member of committees which oversee research
- Being part of an interview committee for University staff
- Developing the best ways of involving patients in research
- Representing the network at national meetings and events
For more information see our network documents: